New Families


Welcome to Dup15q Alliance. I am sure you are feeling overwhelmed after receiving the news that
your child has Chromosome 15q Duplication Syndrome. The good news is that you are not alone
and you have found Dup15q Alliance. Many families find Dup15q Alliance to be their lifeline and a
wealth of information. Nothing compares to the feeling of knowing that there are many other families
all over the world going through, or have gone through, what you are feeling right now.

Dup15q Alliance provides many updates through our website. We are continually adding new
information. We hope that you find the website helpful and we are always open to
suggestions and feedback. I want to inform you of several important bits of information on our website.

First, you will find information on many different topics on our website. You can learn about Dup15q,
view past issues of our newsletter (Mirror) and visit the Dup15q Alliance store to name a few. We
also support an online community called BigTent where you can ask any question in a group that
understands and develop a support system. There are also international connections that can be
found on the Dup15q Alliance International page of the website.

Second, it is important that you visit the Register with Dup15q Alliance page of the website.
This is where you will join our mailing list. We publish a newsletter, called The Mirror,
four times a year and we distribute various informational mailings throughout the year. We do not
share this information with anyone and it is important that you fill out the form completely.

Finally, Dup15q Alliance has a wonderful program called Parent Match. This program matches new families with mentors from the Dup15q Alliance family. The mentors have gone through a training program and are available to talk with you. Many families find it helpful to talk to someone who can answer some of your questions first hand and offer you support. You simply need to contact your Regional Representative they will do the rest. Please check out the Parent Match section on the website or call 1-855-dup-15qa.

I know this is a difficult time for you and your family, but know that Dup15q Alliance is here for you. I want to personally welcome you to Dup15q Alliance and hope to meet you at one of our conferences or regional gatherings. Please do not hesitate to call me at 1-855-dup-15qa or email me at info@dup15q.org. I would love to hear from you.


Warm regards,

Kadi Luchsinger
Dup15q Alliance Executive Director












Dup15q Alliance  P.O. Box 674,  Fayetteville, NY 13066  USA
855-dup-15qa                                              info@dup15q.org
Policy Regarding Use of Dup15q Alliance Trademarks

The trademarks, logos, and service marks (“Marks”) displayed on this website, and related websites belonging to Dup15q Alliance, including the Dup15q Alliance logo, among others, are trademarks of the Dup15q Alliance, are the property of Dup15q Alliance, and are protected. Their uses are restricted to those programs and events sponsored by Dup15q Alliance, and Dup15q Alliance trademarks may not be used for personal financial gain. Use of the Marks is prohibited without the express written consent of Dup15q Alliance. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of Dup15q Alliance.

At times, Dup15q Alliance may grant limited-use licensing agreements to those individuals or groups who wish to help further the mission of Dup15q Alliance. Solely at the discretion of Dup15q Alliance, limited permission for use of Dup15q Alliance’s Marks may be granted for those projects which provide a substantial benefit to Dup15q Alliance or the chromosome 15q duplication syndrome community in general. For consideration, please submit, in writing, a letter of intent, which details how the Dup15q Alliance’s Marks will be used, the length of time they will be used, and the benefit of the project to Dup15q Alliance or the chromosome 15q duplication syndrome community to info@dup15q.org at least 45 days prior to launch.
Letters of intent may also be sent to: Dup15q Alliance, PO Box 674, Fayetteville, NY 13066, or send an e-mail to info@dup15q.org.