Policy Regarding Use of Dup15q Alliance Trademarks

The trademarks, logos, and service marks (“Marks”) displayed on this website, and related websites belonging to Dup15q Alliance, including the Dup15q Alliance logo, among others, are trademarks of the Dup15q Alliance, are the property of Dup15q Alliance, and are protected. Their uses are restricted to those programs and events sponsored by Dup15q Alliance, and Dup15q Alliance trademarks may not be used for personal financial gain. Use of the Marks is prohibited without the express written consent of Dup15q Alliance. Nothing contained on the Site should be construed as granting, by implication, estoppel, or otherwise, any license or right to use the Marks without the express written consent of Dup15q Alliance.

At times, Dup15q Alliance may grant limited-use licensing agreements to those individuals or groups who wish to help further the mission of Dup15q Alliance. Solely at the discretion of Dup15q Alliance, limited permission for use of Dup15q Alliance’s Marks may be granted for those projects which provide a substantial benefit to Dup15q Alliance or the chromosome 15q duplication syndrome community in general. For consideration, please submit, in writing, a letter of intent, which details how the Dup15q Alliance’s Marks will be used, the length of time they will be used, and the benefit of the project to Dup15q Alliance or the chromosome 15q duplication syndrome community to info@dup15q.org at least 45 days prior to launch.
Letters of intent may also be sent to: Dup15q Alliance, PO Box 674, Fayetteville, NY 13066, or send an e-mail to info@dup15q.org.

Dup15q Alliance, P.O. Box 674, Fayetteville, NY 13066  USA
855-dup-15qa                                             info@dup15q.org
Dup15q Clinics

Dup15q Center of Excellence at Massachusetts General Hospital
Boston, Massachusetts
Dr. Ron Thibert

A multidisciplinary clinic for children and adults with duplications of chromosome 15q. All individuals will be evaluated first in the Neurology/Epilepsy Clinic and then referred to various doctors experienced in Dup15q as needed in the areas of Sleep Medicine, Gastroenterology, Genetics, Neuropsychology and Psychiatry. Families traveling from out of town will be interviewed prior to the visit in order to schedule the proper evaluations. Available services include inpatient EEG monitoring, sleep studies and dietary therapy for epilepsy. Families can call (617) 726-6540 to set up an appointment.


Neuro Network Partners (NNP) Autism-Epilepsy Clinic @ Miami Children's Hospital and Miami Children's Hospital Dan Marino Center
Miami and Weston, Florida
Roberto Tuchman, M.D. and Ann Hyslop, M.D.
Contact Johanna Guerra at (954) 385-6202 to schedule an appointment. Please mention you are looking for the Dup15q Clinic and if you have a campus location preference.


University of California Los Angeles Dup15q Clinic
Los Angeles, California
Shafali Spurling Jeste, M.D.
Assistant Professor of Psychiatry and Neurology
Director of Elecrophysiology Core at UCLA
Call (310) 794-4008 to make an appointment.


NYU Langone Medical Center
New York, New York
Heather Lau, M.D.,
Department of Neurogenetics
To schedule an appointment, please call Lourdes Guzman at (646) 558-0802.


Pediatric Neuroscience Center at Swedish Neuroscience Institute
Marcio Sotero De Menezes, M.D.
600 Broadway, Suite 400
Seattle, Washington 98122
(206) 215-1440


UT Le Bonheur Duplication 15q Clinic
Kathryn McVicar, MD
Assitant Professor of Clinical Neurology & Pediatrics
Le Bonheur Children’s Hospital
University of Tennesee Health Science Center
50 North Dunlop Avenue, Suite 400L
Memphis, TN 38103
(901) 287-7183
15qinfoleb@lebonheur.org
http://www.lebonheur.org/our-services/neuroscience-institute/15q-duplication-syndrome/index.dot


Dup15q Clinic at Minnesota Epilepsy Group
Dimitrios Arkilo, MD
Pediatric Neurology & Epilepsy
Minnesota Epilepsy Group, PA
225 Smith Avenue North, #201
St. Paul, MN 55102
To schedule an appointment, call Jennifer Young at (651) 241-5290.


15q Duplication Clinic at University of California San Francisco (UCSF)
Elliott H. Sherr, MD, PhD & Maura RZ Madou, MD - Child Neurology
Anne Slavotinek, MD, PhD - Pediatric Medical Genetics & Maria Roberts Cilio, MD - Epileptologist
Clinic Coordinator: Sara Rzasa, RN
To schedule initial appointment, please contact Raquel Guillen at (415) 353-3682.
Follow-up visits can be scheduled with Christina O’Shaughnessy at (415) 353-2525.


Geisinger Dup15q Developmental Clinic
Geisinger Health System Autism and Developmental Medicine Institute
Brenda Finucane, MS, CGC, Clinic Director
Thomas D. Challman, MD, ADMI Medical Director
Christa L. Martin, PhD, ADMI Director

Provides expert care for children and adults with duplications of 15q11.2-13. Services include developmental assessments, psychological and educational testing, genetic counseling, medication management, neurology consultation and behavioral evaluations. Contact Laura Rogers, Clinic Coordinator, at 610-891-2319 or lhrogers@geisinger.edu for more information or to schedule an appointment.



Dentists

The following dentists have been recommended by our member families:

California

Annie Pham Cheng
6134 Calle Real, Suite B,
Goleta, CA 93117
(805) 681-7301
She is a behaviorialist in a lab coat! She cleans three teeth, then lets
my son get reinforced by squirting water in his mouth or air on his
tummy, then does the next three teeth. She's so funny, patient, and
respectful.

Sumalee Sangsurasak, DDS
1121 East Green Str,
Pasadena CA 91106
(626) 792-2782
She does sedation in her office and is super flexible. Plus her office
is so fun and not a white wall in the place. Great for kids.


Georgia

Dr. Luke Webster
1499 Kennedy Road Suite A
Tifton, Georgia 31794
(229) 238-3787


Illinois

Steve Kuhn, DDS
Treasured Smiles Dentistry
10313 W Lincoln Hwy
Frankfort, IL 60423
(815) 806-1600
He is sweet and kind hearted, listens to the parents. I choose not to
use Fluoride and he is okay with it. There are televisions on walls,
on ceilings so kids can see while laying back.


Massachusetts

Duxbury Children's Dentistry
95 Tremont Street, Suite 18
Duxbury, MA 02332
(781) 934-7111


Minnesota

Dr. James D. Nickman
North Oaks
700 Village Center Drive
North Oaks, MN 55127
(651) 484-8611







New York

Drs. Bigsby & Tunison
Valley Dental Pediatrics
609 East Main Street
Endicott, NY 13760
(607) 754-3903

Fayetteville Pediatric Dentist & Orthodontic Office
8016 E Genesee Street
Fayetteville, NY 13066
(315) 637-6961


Texas

Cynthia Banker,
17119 San Pedro Avenue
San Antonio, TX 78232
(210) 494-4699
Pediatrics only, though will work with adults who have special needs;
works well with kids on the autism spectrum; does well with multiple
drug sensitivities; uses local hospitals for fillings, etc., for children who have extreme sensory issues/other issues and must be sedated for
safety.


North Carolina

Moe Malek
(919) 266-7778
7633 Knightdale Blvd Ste 103
Knightdale NC 27545


Tennessee

Dr. Drew Osborn
121 Parliament Drive
Maryville, Tennessee 37804
(865) 977-8700


Ottawa, Canada

Cheo
Children Hospital Eastern Ontario.
In Ottawa is the best place to go for kids like Noelle! The hygienists
are great. The dentists all rotate, but they are all great.