Dup15q Center of Excellence at Massachusetts General Hospital
Dr. Ron Thibert
A multidisciplinary clinic for children and adults with duplications of chromosome 15q. All individuals will be evaluated first in the Neurology/Epilepsy Clinic and then referred to various doctors experienced in Dup15q as needed in the areas of Sleep Medicine, Gastroenterology, Genetics, Neuropsychology and Psychiatry. Families traveling from out of town will be interviewed prior to the visit in order to schedule the proper evaluations. Available services include inpatient EEG monitoring, sleep studies and dietary therapy for epilepsy. Families can call (617) 726-6540 to set up an appointment.
Neuro Network Partners (NNP) Autism-Epilepsy Clinic @ Miami Children's Hospital Dan Marino Center
Roberto Tuchman, M.D.
Director, Autism and Neurodevelopment Program
Miami Children's Hospital Dan Marino Center
Clinical Professor of Neurology and Psychiatry
Herbert Wertheim College of Medicine
Florida International University
Contact Johanna Guerra at (954) 385-6202 to schedule an appointment, and please mention you are looking for the Dup15q Clinic.
University of California Los Angeles Dup15q Clinic
Los Angeles, California
Shafali Spurling Jeste, M.D.
Assistant Professor of Psychiatry and Neurology
Director of Elecrophysiology Core at UCLA
Call (310) 794-4008 to make an appointment.
NYU Langone Medical Center
New York, New York
Heather Lau, M.D.,
Department of Neurogenetics
To schedule an appointment, please call Lourdes Guzman at (646) 558-0802.
Pediatric Neuroscience Center at Swedish Neuroscience Institute
Marcio Sotero De Menezes, M.D.
600 Broadway, Suite 400
Seattle, Washington 98122
UT Le Bonheur Duplication 15q Clinic
Kathryn McVicar, MD
Assitant Professor of Clinical Neurology & Pediatrics
Le Bonheur Children’s Hospital
University of Tennesee Health Science Center
50 North Dunlop Avenue, Suite 400L
Memphis, TN 38103
Dup15q Clinic at Minnesota Epilepsy Group
Dimitrios Arkilo, MD
Pediatric Neurology & Epilepsy
Minnesota Epilepsy Group, PA
225 Smith Avenue North, #201
St. Paul, MN 55102
To schedule an appointment, call Jennifer Young at (651) 241-5290.
The following dentists have been recommended by our member families:
Annie Pham Cheng
6134 Calle Real, Suite B,
Goleta, CA 93117
She is a behaviorialist in a lab coat! She cleans three teeth, then lets
my son get reinforced by squirting water in his mouth or air on his
tummy, then does the next three teeth. She's so funny, patient, and
Sumalee Sangsurasak, DDS
1121 East Green Str,
Pasadena CA 91106
She does sedation in her office and is super flexible. Plus her office
is so fun and not a white wall in the place. Great for kids.
Dr. Luke Webster
1499 Kennedy Road Suite A
Tifton, Georgia 31794
Steve Kuhn, DDS
Treasured Smiles Dentistry
10313 W Lincoln Hwy
Frankfort, IL 60423
He is sweet and kind hearted, listens to the parents. I choose not to
use Fluoride and he is okay with it. There are televisions on walls,
on ceilings so kids can see while laying back.
Duxbury Children's Dentistry
95 Tremont Street, Suite 18
Duxbury, MA 02332
Dr. James D. Nickman
700 Village Center Drive
North Oaks, MN 55127
Drs. Bigsby & Tunison
Valley Dental Pediatrics
609 East Main Street
Endicott, NY 13760
Fayetteville Pediatric Dentist & Orthodontic Office
8016 E Genesee Street
Fayetteville, NY 13066
17119 San Pedro Avenue
San Antonio, TX 78232
Pediatrics only, though will work with adults who have special needs;
works well with kids on the autism spectrum; does well with multiple
drug sensitivities; uses local hospitals for fillings, etc., for children who have extreme sensory issues/other issues and must be sedated for
7633 Knightdale Blvd Ste 103
Knightdale NC 27545
Dr. Drew Osborn
121 Parliament Drive
Maryville, Tennessee 37804
Children Hospital Eastern Ontario.
In Ottawa is the best place to go for kids like Noelle! The hygienists
are great. The dentists all rotate, but they are all great.